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From The Patients...

After speaking with many patients, several requested that I set up a place where they could tell their stories. I have set aside this area so that their stories, in their own words would be related to the world. The following are the patients' unedited comments. In addition, several of these patients have included their email address so that should you have questions/concerns/etc. and would like to get their perspectives and experiences, you can send these requests directly to them. They truly understand what it is like to be in a similar position to yourself and are eager to help in any way they can. I hope that you find this patient perspectives area useful.

Patient Perspectives Art

Patient Stories - Keratoconus.




Submitted by...  
Carolyn Kim Keratoconus

I am a sixty-two year old lady with Keratoconus, diagnosed when I was twenty-two years old. My right eye was correctable with glasses but my left eye was not. Over the years I've tried hard contacts, toric soft lenses, and gas permeable lenses. The gas perms corrected the vision but were intolerable. The last specialist I saw at a major medical university in 2002 told me that there was no use in trying gas perms again since the technology hadn't improved enough and I wouldn't be able to wear them. A family member was going to see Dr. Maller in Fort Lauderdale so I asked the doctor if he'd be willing to evaluate my eyes to see if he had any ideas that could help me. After examining me he decided to work on the comfort factor first as I told him I wouldn't wear contacts if it were going to be a constant struggle. He conquered that problem with the second set of contacts and improved my sight so well in my left eye that I can see properly with that eye for the first time in my life. I also learned more about Keratoconus, in the short time I was there, than I had learned in my entire lifetime. Next year I'm going back down to Florida to see if I can be fitted with bifocal contacts so that I can dispose of reading glasses.

Carolyn Kim
Seattle, Washington

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